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  • Transformational Caregiving- Guest Post from Donna Thomson

    All of us have been transformed by caregiving. Now we have an opportunity to go deeper, to share our hard-earned wisdom and to map out a new way of practical caring without desperation or burnout. And the best way to achieve this new perspective is face to face, together with others who understand – in The Caregiving Transformation Retreat.

    My life of caregiving began in 1988 when our son Nicholas was born with severe cerebral palsy. During the first years of his life, Nick was often ill and in pain. They were sleepless years, infused with desperate worry.  Of course, all this happened before the internet became a lifeline for caregiver support. What we did have though, were parent retreats, sponsored by our local Easter Seal Society. 

    Those parent retreats were my annual opportunity to learn about new therapies, strategize about the sibling experience and compare notes about ways and means of keeping my marriage intact. But perhaps the best thing about the retreats was the bonding with other parents. Here suddenly, were others who understood. And there were older, wiser parents who took on a natural mentoring role. There was a palpable sense of safety and soothing in those retreats. We all felt it. 

    Fast forward to 2016. My sister Karen and I found ourselves in the thick of caring for our Mom, a loving but willful 94 year old with dementia. Mom was in denial about her needs and living independently with insufficient support. “Muddling through” was a good descriptor for how we were doing.  When we could, my sister and I retreated to our family cabin by the lake. On forest walks, we wondered what might happen if Mom broke one more rule. We laughed at the outrageous imaginings of telling Mom what we really thought about her bad behavior. At the end of the weekend, we went back to being good daughters, diffusing crises and brokering deals to ensure Mom’s stability for another week or month. 

    Looking back on the caregiving retreats in my life, I feel deeply grateful. I appreciate the cyber friendships of other caregivers, but the face-to-face retreats have been something very special to me. They were energizing, hopeful, knowledge-filled and inspiring. In short, they were transformational. 

    Now, together with Aaron Blight, Zachary White and Amanda LaRose, 

    I am honoured and excited to be a co-creator of the new Caregiver Transformational Retreat. Our team has come together with a clear vision of what is helpful to caregivers, wherever they are in their journey of caring. Our retreat is tailored to every group we serve, whether participants are medical professionals or family caregivers. Resilience, personal transformation and a changed perspective on the well of human kindness are the by-products of our retreats. Participants will leave energized, with a new sense of purpose and fulfillment in their caring roles – outcomes only achievable in the magical moments of face to face retreats.  –Written By Donna Thomson

    1. Marge


      December 10, 2019 at 3:49 am -

      Donna, Are family members of individuals with developmental disabilities welcome?

      1. Amanda LaRose

        Amanda LaRose

        December 11, 2019 at 1:43 pm -


        Yes that would be appropriate and would fit into the program nicely.

        Thank you for reaching out,

        Amanda LaRose

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